www.wphtrust.com
     
Home Page Image
 

Whole Person Health Trust


 

 

 

Community Based Health Care Chaplains

Thread 05 - Minimum Data set

This thread discusses - What is the Minimum Data Set which needs to be collected about patients to enable internal audit and evaluation of the service as well as sharing data with other practices to produce research papers which will be important for future developments?

T5001 9th April 08 Claire Pollin

As per handout from Mike.

We agreed to try and set up a template by May on which to start gathering data. 
Becky-I (claire) will liase with you about the template which we need your help to set up please.

Template to include:

  • Date of referral
  • Reason for referral (referral diagnosis)-  ? Free text or drop down list
  • Who referred
  • Dates of attendance to see chaplain
  • Broad heading of interventions used-ticklist style (eg listening, annie and fiona to work on comprehensive list of categories)

Basic demographics eg. age/sex easily retrieveable from EMIS.
Religious groups/nationality may be more difficult-religion often not entered and inconsistensies in which ethnic monitoring form to use/coding of ethnicity may need to be clarified.

Do we also want 'time spent on consultation' on template or could this be retrieved by strict use of the A/S/L function on the appointment screen?  How retrieveable is that info?

Not clear about which medical diagnoses we want to record and how that relates to 'problems leading to referral'  (see P2 of Mike's handout on Evaluating ROle of chaplains).  Mike-can you clarify-thanks.

T5002 12th April 2008 Claire Pollin - URGENT
Really need your input ASAP if we're going to have a draft template by May.

Do we want 'religious groups' on the template? If so would it be a 'picking list' and what would be on it?  Or would free text be better?
Do we want to enter the time spent or would that be retrieved in other ways (A/S/L) system?
What about outcomes at the end of agreed sessions eg. refer back to GP, refer counsellor, discharged, refer local church/mosque/temple, etc etc, DNA?
Is there any other information we would want recorded?

Feedback please ASAP-reply to all. Thanks
T 5003 15th April 2008 Claire Pollin

Dear All,

 Please find attached template draft. (This is a pdf file - click to download). It has 'referred to chaplain' and 'seen by chaplain' so that we can have a single template to record referral and visits to chaplain. Referrer or chaplain simply skip irrelevant questions.  If the referrer does not have EMIS access the chaplain would complete questions re. referrer and reason for referral-otherwise this is done by the referrer.  Hope it's clear.

Need your help and feedback with the following ASAP please:

Reasons for referral-please suggest broad categories, aiming for 4 max plus 'other'

List of interventions-Annie & Fiona. ASAP please. You can have as many as you need + 'other'

Outcomes-feedback on our suggestions + suggestions of who chaplains might refer on to so we can aim for a complete list.

Usefulness- we accept that this is crude and likely biased but maybe better than nothing.  What would the categories be.  Perhaps 'helpful' is better because you can say helpful and unhelpful rather than useful and 'unuseful'!! eg.
5-extremely helpful
4-quite helpful
3-neither helpful or unhelpful
2-quite unhelpful
1-extremely unhelpful

Maybe 1-4 scale better. Can't sit on the fence with no. 3??

Thanks, Claire

T5004 15th April 08 Jan Waterson

My thoughts were that we needed ethnicity as separate from religious group. It may be that we need to record something about whether practising or linked to an active faith community as opposed to nominal. Have we got anything about socio-economic status e.g. occupation, level of education??

What does personal faith mean?

T5005 15th April 08 Claire Pollin

Personal faith would be explained in training and the question is designed to identify those who have active rather than nominal faith.  There may be a clearer way to ask the question. Suggesions welcome.
Good point about ethnicity and occupation. They could be added in. Perhaps emis has standard forms. 
More suggestions please everyone.

T5006 6th May 2008 Ross Bryson

Jan/Emily's draft paper has the following categories:

 

Mental health; Terminal illness; Bereavement; Spiritual issues; Relationships; Physical deterioration/pain

 

I would want to change them a bit  eg

 

Anxiety / depression; Terminal illness; Bereavement or significant loss; Religious/faith issues; Relationship difficulties; Physical health problems / pain; Other

 

That is 6 boxes! Is that too many? What do you think?

T5007 6th May 2008 - Fiona Collins

I have a 7th category in my present analysis of 'Abortion  and related issues'. This could come under bereavement but I find the area fairly unique

T5008 7th May 2008 - Claire Pollin

COMMENTS PLEASE BEFORE 13th MAY - when I'll be handing template over to our IT expert!!

 

Hear is the latest and hopefully almost complete version of the template (click here for pdf file).  Particular points for feedback are:

 

1) Should abortion be listed as a separate reason for referral?

2) Is the occupation list clear enough - how will we educate template users re. what they mean - see second attachment (click here for this pdf file).

3) Are the chaplain interventions grouped appropriately?  Anything to add?

4) What should be included in the 'further referral' list?  Place of worship generically with free text or picking list?  Christian denominations or just 'church'?  Anything else that should be included?

5) How useful is the usefulness scale - especially need feedback from those experienced in research - I guess these scales are quite standard??

 

Thanks very much,

Claire

T5009 17th May 2008 - Mike Sheldon

I suggest you have a section which enables the chaplain to record date first seen, and date of each subsequent attendance so that the total amount of time given may be calculated.

Under Interventions – I would list “Listening” first.

I would also allow a box for the chaplain to use called – “Problems Identified during sessions”

T5010 May 17th 2008 - Jan Waterson

Would suggest abortion stay under bereavement and loss

 

Occupations fine

 

As I said earlier unsure about the placing of forgiveness - unless it is prayer for forgiveness, in which case it's fine - but naybe insert 'for' after 'prayer'. Certainly keep other in iunder prayer and also under ritual

 

It would be interesting to know which churches people are referred to, but don't think it essential. Can youi put a free text box in for further details - that might do.

 

Usefulness scale I think is important as it gives some way of quantifying outcome. But I guess we want to know why it was as it was.

T5011 May 17th 2008 - Jan Waterson

Think I'm being a bit picky but I'm not sure about the phrasing 'forgiveness' (maybe it's the Catholic in me). I know what you mean and it's a really important part of your interventions. But I'm not sure of the phrasing and  wonder if confession and forgiveness should not go together or is it something about regrets, remorse and moving on???

T5012 17th May 2008 - Fiona Collins

I am sorry this email seem to slip on to another page.

I do record the Religion and apart from upfront worldwide religions I use Spiritual, Nominal, and None.

 

 

Main sections

7th May 08
A pdf file of this template may be downloaded,

and also a pdf file of the occupations breakdown.

Updated May 17, 2008 Home > Whole Person Health Index > Spirituality Index > Index to chaplains pages > Thread 05