The Whole Person Approach to Health Care |
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This chapter also needs a major re-write along the lines of the index above. Note I think I am changing the definition of health slightly, putting maturity as 6, and splitting coping and adapting. Think this through again Michael. Note I need to remove major discussion on health from the other chapter dealing with WPH principles, and need to decide what to put where, or even combine chapter 9 and 10. Development of a whole person approach McSherry describes the situation in the USA in the 1980’s where scientific evidence, mainly from the social science disciplines stressed that religious and spiritual values are one of the critical factors in the perception of quality of life. To quote her “The aspect of man concerned with reasoning, purpose and values, has been demonstrated by several social science disciplines to be key to thinking and motivation for health behaviour and quality of life” (McSherry, 1983 p 218). She goes on to describe several models of the delivery of whole person care in primary care centres, community centres and Churches. She also describes the studies indicating the effectiveness of including a whole person approach in managing ill health, especially in the chronic diseases. (Paper in 01.5)
Basic principles of whole-person health
The success and deficiencies of scientific medicine These scientific medical advances have played a definite part in the increasing life span of people in developed countries, and could improve life expectancy in developing countries as well if only the resources and political will were available. People in the developed world have less disabling morbidity and longer life spans, so that must be a success. Yes, of course it is, up to a point. One of the less obvious costs of these advances has been the necessity of adopting a scientific humanistic world-view within which medical science can observe and manipulate the world. This states that we live in a closed physical domain where everything can be understood by cause and effect explanations which are all open to mankind’s powers of reason. This has led to a reductionist form of rationalism relegating everything that cannot be “proved” by observation and experimentation to the non-scientific metaphysical world where “facts” are replaced by “faith”. This view of faith is not used correctly because most of science itself is built on faith – that is there are basic scientific assumptions which have to be accepted as true because they themselves cannot be proved. Development of alternative views To counter this success story of medical science there is increasing evidence that patients report suffering more ill-health than in the past. This may be a softening of people’s expectations so that they put up with less pain and inconvenience, or it may be due to those physical problems which science has solved being replaced with other illnesses and health issues that are resistant to these advances. It has been reported that up to 50% of the population in developed countries are prepared to consult an alternative practitioner for health issues as the “western” model has not been sufficient for their health needs. We are now said to be moving into a new world-view, that of post-modernism. This way of interpreting the world has evolved through the past four decades in Western society, and reflects an increase in the prominence of individualism, a rejection of paternalism and authoritarianism, and a sense of the complexity of life in societies. This view of the complexity of life has begun to question many of the assumptions of the scientific humanistic view-point, especially when it comes to considering the health of an individual person. Ill-health can now be described in social or personal terms as well as scientific ones. The power of the mind over the body is stressed and many people believe in the importance of spirituality. How can we make sense of all these strands and use them for our benefit? Principles of whole-person health care Whole-person medicine seeks to bring together the best of these post-modern health care expressions whilst not losing the benefits of a physical scientific approach. Starting from the base-line of the best Evidence Based Medicine the additional set of beliefs or principles upon which a whole-person approach is based are set out below. A fuller description of these principles is contained in the next chapter Any model of medical care starts with a statement of the anthropology to be followed. This is a description of how men and women are made and function. The current western medical model is largely based on a scientific humanistic anthropology where man is considered as a superior kind of animal with highly developed intellectual, emotional and social components. A whole-person understanding of anthropology accepts that the physical component of people has many similarities to the animal kingdom, but the person-hood side is well developed into a psyche (mind and emotions) and spirit. Thus any understanding of ill-health in a whole person model demands a description of the problem in physical, psychological, social and spiritual terms. Definitions of health Historical understanding of health Very brief historical review – although most beliefs are still present in the world today Why do we need a definition of health? So where do we begin? Environment The environment in which the person lives will have a profound effect on their health – A broad definition of health which encompasses these three dimensions is more likely to lead to treatment goals which are likely to be more effective in improving the overall health of the patient. Thus advising a person to follow a particular diet if they are too poor to obtain it will not be effective. Likewise giving a patient antibiotics when they believe that they will poison him is likely to lead to non-compliance. Anthropology We are indivisible beings with many different functions and abilities which mainly include the addition of reasoning and intellect and a spiritual capacity to a physical body. As the Hebrew concept has taught us we are indivisible and a whole being. I cannot divide off my soul or my spirit and nurture that at the expense of my body. Maltreating the body also maltreats the spirit, and vica versa. Every action has spiritual, personal and physical dimensions. Ill health is the common end pathway of any disorder or dis-ease in the person, whether in the body itself or in their mind, emotions, environment or spirit. The whole person functions together.
Health and wholeness Health is a dynamic in which we grow and mature throughout our lives, and is the strength we have to enable us to live life to the full and complete the tasks to which we have been called. It involves an equilibrium between ourselves, and the world around us which is based on right relationships and values such as respect and loving kindness. Health is a therefore a journey through life and into death where we always seek to adapt to disability and suffering and cope with pain and difficulties in a way which matures us.
The dynamic aspects of health
We all have some diseases within us, even from the day of our birth. Some of these are potential and may never be realised (I may have the genetic predisposition to lung cancer but reduce my risk of getting it by not smoking). Other diseases are relatively trivial in our society (such as my myopia which is well corrected by glasses, but prevented me from a career in the Royal Navy). Other diseases come with advancing age so that by the time of death a pathologist can list dozens of disease processes in various stages of advancement. Some diseases I have brought upon myself through my lifestyle (I think I am a little over-weight but my doctor says I am obese). Some diseases remain hidden for many years and cause few symptoms in the early days (such as high blood pressure). We also all have symptoms both physical and psychological for much of the time. So in the presence of a continuous presence of disease and symptoms, pain and suffering, our health depends on how we process, adapt to and cope with these health problems. Various measures such as the locus of control or sense of coherence tests have attempted to demonstrate how much a person is able to take control of their own responses to challenges, and so improve their ability to function and enjoy life despite disabilities and difficulties. Work by investigators such as Aaron Antonovsky, who looked at women surviving the Holocaust, has demonstrated that where some people crumple and suffer health consequences for the rest of their lives, others are able to rise above the horror and become stronger and so less likely to encounter health problems later in life. Thus a healthy person is one who when faced with disease, disability, suffering or pain is able to find inner reserves which then strengthen the person for future challenges.
Self-fulfilment has three important steps. First you need to have a correct self-awareness in which you understand your strengths and weaknesses, your gifts and abilities. Second these abilities need to be translated into the possibilities and dreams, the heights to which you could scale. But then third these goals and dreams need to be seen as an impossible or very difficult target to reach, but one which must be constantly aimed for. Thus we never achieve complete self-fulfilment, we never arrive at the end of the road – there is always further to go. Thus hope and realism need to be balanced throughout life to provide sensible goals for each stage of our existence. A healthy person can re0evaluate their situation and adapt their goals accordingly. An important aspect of this concept is the fact that all people are made with creativity within them. The ability to create seems to be an essential human attribute. Each person has to discover where their creativity lies and use this in their life in some way. It may be obvious as in having and bringing up children. Or it may be more hidden in performing a difficult task well under trying circumstances. The courage to take risks and seize opportunities – the enemy is fear
The role of relationships in our lives constantly needs emphasising. We are made both by and for relationship. God created us to be in relationship with himself, and then so designed our world that we ourselves are formed as persons through our relationships. In recent times we have seen the equal dangers of treating people as isolated individuals (there is no such thing as society, just a collection of individuals, said Margaret Thatcher) or seeing individuals as insignificant parts of a controlling society as in communism. Over the last few decades there has been a growing understanding amongst theologians that there is a third way which is more biblical. Here the person is constituted at the most fundamental level by his or her relations, both to others and to God. Christians have traditionally grounded their affirmation of human dignity and personhood in the creation of man in the image of God, yet what it means to be made in the image of God has been much debated. In the Augustian tradition a person was construed in their own relationship with themselves. Thus we began by “knowing our own mind”. However within theological study there has recently been a shift towards the understanding of the importance of relationships in the development of personhood. John Macmurray proposed a complete change of standpoint from the primacy of the cogito to the primacy of the self as agent and constituted by his relationship with another person. In his chapter Persons in Relation (in the book edited by Schobel and Gunton in1991 called “Persons Divine and Human”) MacMurray has said “The self is constituted by its relation to the other; that is, it has its being in its relationship; and that this relationship is necessarily personal”. The being of God, in whose image the Bible says we are made, is understood as a Trinity, in order to exhibit a relationship within the Godhead. In creation God made us in his image, and then calls us to be in relationship with him. The broken relationship consequent upon the Fall and man’s sinfulness, is then redeemed through Christ’s work on the cross. The understanding of man as a relational being is one of the main themes of the work of Alistair McFadyen and is developed in his book The call to personhood (Cambridge University Press 1990). McFadyen argues that each person can only be understood in social terms, thus “we become the people we are through our relationships with others”. After describing the two common models of personhood (the models of individualism and collectivism as quoted above), he describes a third way in which a relational model of personhood is developed which does justice to personal freedom and autonomy whilst simultaneously acknowledging the role of social relations and institutions. From the outset he stresses that this model does not just encompass inter-personal relationships but also includes social, cultural, historical, political and moral relationships. This concept of a person is both dialogical (formed through social interaction, through address and response), and dialectical (never coming to rest in a final unity, if only because one is never removed from relationship). Talk of how human beings have their being in our society has been so completely secularised that we find it increasingly difficult to talk of humanity with reference to God in a way which is meaningful in our contemporary situation. It is my belief that this missing dimension makes a real and important difference to our health and to our every day practice and mode of living.
An important part of our health status concerns what we believe in. It seems that we are made to work through faith. We develop a world view which describes what we believe in. However in order to act on our beliefs we need to move, and this acting on our beliefs we can call faith. Everyday we have to put our faith in many things, otherwise we would never get out of bed. So assuming that this is correct and we live day by day thought acts of faith, does it matter what we believe in? Is some belief better than others, or is it all relative? Understanding the truth about us and our world is the aim of all religions and belief systems, and each person believes that there own version is the best (but then they have to don’t they?). As doctors we constantly espouse that our way (the western scientific model of illness) is the correct one and seek to get people to follow our advice with pills and medical interventions. Of course we are well intentioned and really do believe what we practice. But what of the growing alternative medicine field – where equally intelligent and committed people believe and practice quite different things. Is it all the same in the end – does whatever you fancy do you good? There are two parts to the answer to this question. In the first part it may be argued that it doesn’t matter what you believe in, it is the power of belief itself which makes you better. This takes us into the whole area of the placebo response which has been argued to account for a significant proportion of the good done to us by both conventional and alternative medical practice. The power of belief affects our internal coping mechanisms and either makes us better, or helps us to feel better. However the second answer to the question has to draw distinctions between activities that definitely do us harm, and those which may be beneficial or neutral to our health. Let us take a simple example using diets. All sorts of food allergies, over-indulgence or shortages of essentials in the diet have been put forward as causes of ill-health. When starting a new diet most of us feel better at first (perhaps the placebo part), but then for our health to really improve in the long term the diet we are following must contain certain elements. Thus a diet with no fibre, minerals or vitamins will eventually lead to serious ill-health. The composition of a healthy balanced diet has been well researched, and we should all eat this (with the obvious exception of people who have known allergies to certain foods) in order to maximise our health.
So health is a journey rather than a state. We move on through different levels of health. We develop a story which we are always willing to tell to others. This health narrative is an important part of the process of being healthy. The story needs to reflect our response to the illness, but also be truthful as to the causes of the problems. Here we enter the difficult area of sense of coherence and locus of control. Two expressions which seek to encapsulate how much control the person has over their own health. With a good sense of coherence and an internal locus of control the person is able to “do something for myself” to make them healthier. With a poor sense of coherence and an external locus of control the person does not believe that they have any role in making themselves better, but quickly adopt the “sick role” and expect others to make them better. Thus two people with exactly the same disease process can have completely different understandings of their health. One can quickly follow medical advice, and do numerous things to make themselves fitter over-all, and so minimise or adapt to the pathology which is present. Others will believe that the disease processes cannot be influenced or altered, except by medical intervention, and so become passive. Health measurements change with age – if as a 65 year old my present good health was in a 25 year old he would be unhealthy (Express this better !!)
For Christians, Jews and Muslims the final aspect of health is their relationship with God. This of course is a two way affair and we must first recognise that we are often baffled and confused by God’s relationship with us. Many Christians feel that God has deserted them, especially at times of pain and suffering.. It does seem that God uses illness and suffering to help us grow and mature. God’s ultimate desire seems to be for us to enjoy heaven, starting here and continuing after death. Some people seem to reach this point even in the midst of great pain, but for most of us we are still struggling on the journey. We seek for shalom – that peace with ourselves, with others and with God which is the ultimate aim for us all. HEALTH IS ………
NOTE – this is unbalanced, I must emphasise that health is to do with diminishing or curing when possible the patho-physiological processes which lead to illness. In the same way I need to do the same with the psychosocial, and thirdly with the spiritual, SO re-order all of the above into these 3 categories. Telling the whole story Final chapter in life of a healthy death Measurement of Health Chris suggested putting the measurement and assessment of each area of health within the paper – I need to work on this
Health is therefore a dynamic in which we grow and mature throughout our lives, and is the strength we have to enable us to live life to the full and complete the tasks to which we have been called. It involves an equilibrium between ourselves and the world around us, which is based on right relationships and values such as respect and loving kindness. Health is a therefore a journey through life and into death where we always seek to adapt to disability and suffering and cope with pain and difficulties in a way which matures us as whole people. So we can summarise our understanding of health with the statement that health is …..
Patient centred care.
The importance of narrative – the true health story An understanding of the true health story is an essential first requirement for going on to change that story. The understanding of the patient comes mainly through the telling of their story to the listening health professional who can help the patient reflect on the events and situations which led up to the problem, and the likely factors which will keep the person in ill-health if they are not changed. Making a diagnosis in whole person terms The integrated therapeutic team Healing therapeutic relationships These healing relationships require a level of trust to overcome the vulnerability felt by patients as they share intimate details of their life experience. This trust depends on acceptance, respect and affirmation from the therapist. Each therapist needs to concentrate on the patient and participate in their narrative as an informed and supportive friend on the journey. Self-help Successful outcomes We can summarise the benefits of this whole-person approach as the following key outcomes would be sought. By the patient
By the doctor
Health, peace and well-being Summary Whats missing?? WPM seeks to combine the best of EBM, the understanding of the psychological, emotional and social aspects of health with an understanding of the contribution to health by the spiritual aspects of mankind. Thus learning from several “post-modern” movements we also see the importance of being patient centred, using narrative effectively etc etc At first sight this just looks like a hotch potch of every latest fad tacked onto our usual medical model, but it is more – as you seek to look at the whole it becomes more than the sum of the parts. New understandings can be added as it is in the early stages of development. |
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| Updated January 27, 2008 | Home > Handbook Index > Handbook Chapter 09 | |||||||||||||||||||||||||||